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Writer's pictureCaitlin Hughes

Understanding and Supporting Autistic & ADHD Burnout: Strategies for Pacing, Setting Boundaries, and Self-Care

Updated: Nov 13


Burnout has become a frequent topic in conversations about mental health, but it’s particularly relevant when discussing the lives of neurodivergent individuals. Autistic folks and ADHDers face unique challenges that can lead to burnout, making it essential to understand how to prevent and manage it effectively.


In this blog post, we’ll explore the concept of burnout in relation to Autistic folks and ADHDers, its causes, and signs. We’ll also share strategies for pacing, setting boundaries, and self-care that can make a world of difference. Whether you’re neurodivergent, or someone who wants to support a loved one, this guide offers valuable insights to enhance well-being.


Defining Burnout

Burnout is a state of physical, emotional, and mental exhaustion and manifests uniquely in Autistic folks and ADHDers. For neurodivergent people, this burnout often stems from the ongoing challenge of adapting to a world primarily designed for neurotypical individuals. It's important to note that neurodivergent burnout goes beyond mere tiredness; it represents a complete depletion of energy reserves that can lead to serious physical and mental health challenges, making its understanding and support crucial.


Autistic burnout, in particular, is characterised by profound exhaustion, withdrawal, and diminished functioning, which differs from typical occupational burnout and depression. Autistic burnout is frequently exacerbated by stressors such as sensory overload and the demands of social masking (Mantzalas et al., 2024). As noted by Arnold et al. (2023a), the experience of Autistic burnout includes both chronic and acute episodes, largely due to the stress of navigating a neurotypical environment.


Furthermore, it leads to cognitive decline and social withdrawal, often manifesting as exhaustion, withdrawal, and executive function difficulties, which are distinct from depression and non-autistic burnout (Mantzalas et al., 2022; Higgins et al., 2021). Additionally, Autistic burnout is defined as chronic stress resulting from a mismatch between expectations and actual capabilities, underscoring the necessity for effective self-care strategies (Raymaker et al., 2020).


Causes of Burnout

Understanding the unique challenges faced by neurodivergent individuals is critical for providing effective support. Daily encounters with overstimulation and the pressure to conform can lead to burnout, characterised by chronic fatigue, diminished skills, and reduced sensory tolerance. Recognising these symptoms is essential for adjusting self-care routines (Raymaker et al., 2020). Factors such as "masking" autistic and ADHD traits, life stressors, and experiences of stigma contribute significantly to vulnerability to burnout (Mantzalas et al., 2022). The pressure of high expectations exacerbates cumulative stress, highlighting the need for realistic pacing and boundary-setting to combat burnout. By acknowledging these challenges, individuals can better advocate for themselves and seek necessary support. Ultimately, addressing burnout is vital for improving quality of life, health, and independent living, emphasising the importance of prioritising self-care and establishing boundaries (Raymaker et al., 2020).


Symptoms of Burnout

Burnout manifests in various ways, including:

  • Physical Symptoms: Chronic fatigue, sleep disturbances, headaches.

  • Emotional Symptoms: Anxiety, mood swings, feelings of overwhelm.

  • Cognitive Symptoms: Difficulty concentrating, memory problems, decision-making challenges.


Personal Experience with Burnout

Caitlin here!


I'm going through some legit burnout right now and I'm running low on spoons and it's hard to articulate my inner experience so I'm getting my wife and business partner Emma to help out.


Take it away Emma!


Burnout can feel like a relentless push and pull, with external demands draining the limited resources we have inside. For many, especially neurodivergent individuals navigating workplaces primarily designed for neurotypical norms, this struggle can be even more pronounced. The pressure to meet expectations often leads to overextending ourselves, giving more to our jobs than we can sustainably offer.


In high-pressure environments, it’s all too easy to forget the importance of healthy boundaries. Without them, the workplace can transform into an unhealthy space where burnout looms. The constant need to mask our true selves, often heightened in managerial roles, can engulf us in a cycle of exhaustion that feels insurmountable. The daily toll manifests as fatigue and stress, eroding our identities and relationships, leaving us feeling like a hollow version of ourselves—both at work and home.


As neurodivergent individuals, we may find ourselves performing dual roles: the professional mask during the day and a drained, emotionless version of ourselves at night. This existence can lead to disconnection from loved ones, as we become mere shells of our former selves—there but not really present. The feelings of hopelessness and lack of motivation can be overwhelming, often making it seem like no one hears our silent cries for help.


However, there is a path to healing. A turning point often comes when we muster the courage to seek support and begin the journey of unmasking—embracing the unique excitabilities and strengths that come with being neurodivergent. By accepting our true selves and recognising our limitations, we can slowly rebuild our sense of identity and confidence.


Creating a burnout-free life begins with establishing healthy boundaries. It’s about learning to work within our capacities, aligning our tasks with how our brains function best, rather than against them. This transformative approach not only fosters resilience but also allows us to reconnect with the vibrant individuals we truly are.


In this journey, it’s crucial to remember that you are not alone. Many share similar experiences, and reaching out can lead to meaningful connections and support. By prioritising your well-being and advocating for your needs, you can cultivate a life that feels fulfilling and authentic—one free from the grips of burnout. Rediscover the beautiful person within, and take the first steps toward a healthier, more balanced existence. 


How to Manage Neurodivergent Burnout

Recognising early signs of burnout is crucial; be mindful of changes in energy levels, mood, and physical health to tackle burnout before it escalates. Managing stress and sensory inputs can also play a significant role in prevention.


Raymaker et al. (2020) highlight key strategies for addressing autistic burnout, emphasising the importance of acceptance, social support, and engaging in activities that resonate with one’s autistic identity. These approaches enhance self-care by alleviating the pressure to mask neurodivergent traits, fostering authenticity, and ultimately improving mental health. Additionally, Mantzalas et al. (2022) identify protective factors such as energy management, self-awareness, and stimming as helpful tools to further mitigate burnout.


Connecting with the autistic community is also vital, as shared experiences and understanding facilitate recovery. Additionally, leaning on family, friends, and professionals who are understanding and empathetic can provide essential emotional support and practical assistance, allowing individuals to navigate their experiences more effectively and develop more tailored strategies for overcoming burnout.


Strategies for Pacing

Effective pacing is crucial for managing energy levels and preventing burnout, particularly in neurodivergent individuals. Implementing structured routines with scheduled breaks can significantly help, as recovery may take over three months (Higgins et al., 2021). Recognising early signs of burnout and allowing for mindful transitions are essential strategies (Arnold et al., 2023b). To aid in pacing, self-monitoring is vital; individuals should encourage themselves to identify when they are approaching their limits. Scheduled downtime, such as short walks, quiet moments, or engaging in hobbies, can help recharge energy levels and prevent overwhelming situations (Arnold et al., 2023a). Additionally, setting realistic goals and breaking tasks into smaller, manageable steps allows for a more balanced approach, reducing the risk of overcommitment and burnout. Understanding and respecting personal limits is key to maintaining overall well-being (Mantzalas et al., 2024).


Setting Boundaries

Establishing healthy boundaries is essential for reducing burnout and enhancing overall well-being. By recognising the importance of saying no and safeguarding your time and energy, you not only empower yourself but also improve your quality of life. Effective communication of your needs plays a crucial role in both work and personal relationships; when you articulate your boundaries, you help others understand and respect your limits. This journey involves learning to say no without guilt, a liberating skill that allows you to advocate for reasonable accommodations and manage social interactions more effectively (Mantzalas et al., 2024).


It's vital to learn how to communicate needs, decline extra responsibilities, and create safe spaces for self-expression without pressure (Higgins et al., 2021). Clear communication about personal limits empowers autistic individuals to request solitude and recovery time as needed (Arnold et al., 2023b). Furthermore, fostering environments that allow for retreat during overwhelming moments encourages effective boundary-setting and the expression of personal needs (Arnold et al., 2023a).


Self-Care Practices

Creating personalised self-care routines is essential since everyone's approach to self-care is unique. It's important to discover activities that help you relax and rejuvenate, whether through mindfulness practices, hobbies, or time spent in nature. Engaging in relaxation-promoting activities like meditation, yoga, or reading can significantly reduce stress and enhance overall well-being.


To ensure your self-care routine evolves with your needs, regular assessments are key. This allows you to adjust strategies for maintaining a healthy balance between work and relaxation. Incorporating techniques that address both mental and physical health—such as mindfulness and sensory breaks—is vital (Mantzalas et al., 2024). Activities like physical exercise and enjoyable hobbies play a crucial role in managing burnout, while therapy or support groups can offer valuable coping strategies.


Promoting mindfulness, engaging in activities you love, and seeking support from empathetic peers or professionals can help mitigate feelings of withdrawal and stress (Higgins et al., 2021). Effective self-care also involves sticking to familiar routines, prioritising adequate sleep, and creating low-sensory environments (Arnold et al., 2023b). Mindfulness and sensory management techniques are particularly beneficial, with meditation proving effective for stress management (Arnold et al., 2023a). Additionally, participating in hobbies encourages emotional recharge, supporting a holistic approach to well-being.


Moving Forward

Creating supportive environments is vital for reducing the pressure to mask among Autistic folks and ADHDers. This includes fostering community acceptance and advocating for accommodations such as flexible work arrangements and sensory-friendly spaces to ease stress. Enhancing awareness and education about autistic burnout among both clinicians and the public is equally important, as a deeper understanding can prevent misdiagnosis and strengthen support systems (Arnold et al., 2023b).


Higgins et al. (2021) further emphasise the need to raise awareness about autistic burnout within clinical and community settings to improve support and treatment plans. Additionally, Mantzalas et al. (2022) advocate for societal change through greater autism awareness and acceptance, which can create environments conducive to preventing and recovering from burnout. Finally, Mantzalas et al. (2024) stress the importance of informing caregivers and employers about autistic burnout, which is crucial for developing targeted interventions and supportive environments.


Conclusion

Recognising and managing Autistic and ADHD burnout is essential for maintaining well-being. By understanding the unique challenges and implementing tailored strategies for pacing, setting boundaries, and self-care, you can prevent burnout and enhance your quality of life.


If you’re struggling with burnout, remember that support is available. Reach out to professionals, join support groups, and continue exploring strategies that work best for you. Your well-being is worth the effort, and taking proactive steps can lead to a more balanced and fulfilling life.


References

Arnold, S. R., Higgins, J. M., Weise, J., Desai, A., Pellicano, E., & Trollor, J. N. (2023). Confirming the nature of autistic burnout. Autism, 27(7), 1906–1918. https://doi.org/10.1177/13623613221147410

Arnold, S. R., Higgins, J. M., Weise, J., Desai, A., Pellicano, E., & Trollor, J. N. (2023). Towards the measurement of autistic burnout. Autism27(7), 1933–1948. https://doi.org/10.1177/13623613221147401

Higgins, J. M., Arnold, S. R., Weise, J., Pellicano, E., & Trollor, J. N. (2021). Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnoutAutism : The International Journal of Research and Practice25(8), 2356–2369. https://doi.org/10.1177/13623613211019858

Mantzalas, J., Richdale, A. L., & Dissanayake, C. (2022). A conceptual model of risk and protective factors for autistic burnout. Autism Research15(6), 976–987. https://doi.org/10.1002/aur.2722

Mantzalas, J., Richdale, A. L., Li, X., & Dissanayake, C. (2024). Measuring and validating autistic burnout. Autism Research17(7), 1417–1449. https://doi.org/10.1002/aur.3129

Raymaker, D. M., Teo, A. R., Steckler, N. A., Lentz, B., Scharer, M., Delos Santos, A., Kapp, S. K., Hunter, M., Joyce, A., & Nicolaidis, C. (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout. Autism in Adulthood2(2), 132–143. https://doi.org/10.1089/aut.2019.0079

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